| NICU / Premature Babies If your baby has spent time in a NICU (Newborn Intensive Care Unit) or was born prematurely, share your experiences with other mums here. |
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July 4th, 2009, 11:31 PM
| | BellyBelly Member | | Join Date: Oct 2008 Location: Canberra
Posts: 41
| |  Premmie bub at home on oxygen?
DS was born at 25+1 weeks weighing 800 grams. During his first 6 weeks of life, he contracted 3 life threatening infections and was ventilated for a lengthy period of time which contributed to his diagnosis of Chronic Lung Disease. DS is currently 36+5 and has been taken off CPAP on to High Flow (flow of 3-6 and O2 of 25%) due to failed attempts on Low Flow. He currently weighs 2953 grams and is breast feeding well so, the next step is to slowly wean him off high flow onto low in preparation for him to come home.
Just wondering how people dealt with their premmie bubs coming home on oxygen and what was your day to day routine like?
__________________
Me 36, DH 37 
DD1: 20/6/96
DD2: 21/10/03
DS1: 14/4/09 Born @ 25+1 weeks 800 grams. Home after 106 days in the NICU/SCN.  |
July 4th, 2009, 11:47 PM
|  | Cheeky? You don't know the half of it... | | Join Date: Aug 2008 Location: Brisneyland
Posts: 1,476
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A friend of mine brought home her little guy on oxygen. All I really know though is that you had to watch not to trip over the tube. And they had a small tank that went out and about with them, as opposed to the big tank they had in the car. He was gradually weaned down by the number of hours he was on it, and was off it by 6 months (was born at 27wks)
That's all I have to offer. Good luck with it, and I hope he keeps on growing strong!
__________________  |
July 5th, 2009, 01:06 AM
|  | Random Act of Kindess Recipient | | Join Date: Nov 2004 Location: VIC
Posts: 1,325
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hey there and congrats on your bubs!
a few of my friends have had prems born and home on O2. they found places like ausprem a great resource- so it might be worth looking them up!
i have seen one of my friends following her 3 year old around up and down a playcentre with the long tube of O2 follow- quite a sight! She was a 25 weeker. He other son who was a 32 weeker was on O2 for 12 months- but was the bigger of twins.
My twins were born at 30 weeks but did not need to come home on O2.
take care hun and hope that your prem journey doesn not have too many bumps in the road!
__________________
Miracle B/G twins are now 6 - our treasure and our gift  grew wings on 18/9/7 at 12 weeks- never forgotten . .
Our VBAC miracle boobie boy - 2/2/09 - Our Promise!   |
July 5th, 2009, 01:34 PM
|  | PROUDLY co-slept, cloth bummed & breastfed my premmies! | | Join Date: Oct 2007 Location: Western Australia
Posts: 2,183
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Sorry I can't help, we've been lucky to escape both CLD and home oxygen.
He's doing so well though! I love hearing how he's going 
__________________
Sally 23 & Nigel 23 Proud Parents to:
25/02/07 Brendan born @ 30+1 1545gms (3lb 6oz) L 40.5cms & HC 28.5cms Apgars 2:4
Sensory Intergration Dysfunction & Speech Delay
19/06/09 Tristan born @ 34+3 3090gms (6lb 13oz) L 50cm & HC 33cms Apgars 6:6 |
July 10th, 2009, 04:57 PM
| | BellyBelly Member | | Join Date: Oct 2008 Location: Canberra
Posts: 41
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Thanks for the positive feedback. DS is doing better than expected, still on high flow but in air with a flow of 2.5.  he will be home soon.
__________________
Me 36, DH 37
DD1: 20/6/96
DD2: 21/10/03
DS1: 14/4/09 Born @ 25+1 weeks 800 grams. Home after 106 days in the NICU/SCN. |
July 10th, 2009, 05:01 PM
|  | Thankyou to my RAK from the bottom of my heart | | Join Date: Jul 2007 Location: Sydney
Posts: 3,265
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I just want to wish you all the very best, and hope your little man will be home soon. It is just so amazing to read your story and to hear that your little bub, has survived such odds. Congratulations hun, and lots and lots of healthy vibes coming your way. hugs
__________________  DS 18yrs & DS 14yrs DD 6yrs & DD 5yrs m/c 16wks 22sep01, twins 12wks 8feb02, 5wks 11Jun07, 5wks 201207   |
July 10th, 2009, 05:24 PM
| | PROUDLY co-slept, cloth bummed & breastfed my premmies! | | Join Date: Oct 2007 Location: Western Australia
Posts: 2,183
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Great news
I have my fingers and toes crossed for you! I hope you have him hope real soon
__________________
Sally 23 & Nigel 23 Proud Parents to:
25/02/07 Brendan born @ 30+1 1545gms (3lb 6oz) L 40.5cms & HC 28.5cms Apgars 2:4
Sensory Intergration Dysfunction & Speech Delay
19/06/09 Tristan born @ 34+3 3090gms (6lb 13oz) L 50cm & HC 33cms Apgars 6:6 |
August 11th, 2009, 08:41 PM
|  | BellyBelly Life Member | | Join Date: Jul 2005 Location: Cbah- Sydney
Posts: 4,908
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i just seen your ticker and wanted to say congratulations on getting your little guy home!! i hope all is going well
__________________ Nic (29) Trent (32) 8th Oct 05 DS1 Nixon 17.04.06 33w 5lb 1oz DS2 Tyron 14.10.07 38w 7lb 10oz  |
August 11th, 2009, 08:48 PM
|  | | | Join Date: Oct 2005 Location: The Land of Thankfulness
Posts: 7,811
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Rosebud so so so happy  to see you are home!!!!!!!!!
My Imogen was born at 27+5 and weighed 815grams. She too has chronic lung disease and it's been a massive almost 2 years for her. She came home at nearly 14 weeks of age. She didn't have o2 at home - but plenty of it inhospy! It seemed like it would never end - and so many came and went and we were still there... 
However, that feeling of walking in the front door clutching that beautiful baby is one of my sweetest of life time memories... I know it will be one of yours also!
Congratulations again...  |
August 12th, 2009, 09:48 AM
| | BellyBelly Member | | Join Date: Oct 2008 Location: Canberra
Posts: 41
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Thank you to all!
It has been a very long journey and one that I never thought I would have to travel. We are extremly lucky that for a 25 weeker Angus only has CLD. One week before discharge, the neonatologist (sp?) decided that enough was enough and turned off his O2and to everyone's amazement, he was fine and breathing totally on his own.
I often sit with my beautiful baby at my breast in tears...tears of joy and thanks that he actually made it home...both DD1&2 have decided that they want to become nurses when they grow up DD2 only said to me yesterday that she wanted to help babies just like the nurses helped Angus. They too had been moved by how amazing the staff are in the NICU and what special people they are...how do you thank such a special group of people that saved the life of your child?????????
__________________
Me 36, DH 37
DD1: 20/6/96
DD2: 21/10/03
DS1: 14/4/09 Born @ 25+1 weeks 800 grams. Home after 106 days in the NICU/SCN. |
August 25th, 2009, 12:14 PM
| | BellyBelly Member | | Join Date: Mar 2006 Location: Mornington Peninsula, Australia
Posts: 238
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I know it's late.
Maxx was born at 25w and also coped several infections infact 8, had collapsed lungs. He just turned one and was in hosp for 153 days. He came home on oxygen at the end of Feb and has been off it now for about 3 months.
You get use to it but don't know how many times I nearly ripped his face off from standing on the damn cord. The routine is the same as having a baby home without oxygen etc you just have to lug the cylinders around when you go out.
If you want any other help or info just ask or pm me.....very happy to help!
Shazz.
__________________ 11 IVF Transfers  ~Chloe Jade~ born sleeping at 16w 2d. | |
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