Bicornuate Uterus

[margeo]

I have been diagnosed with a Bicornuate Uterus.
Misscarried @ 16.5weeks


Would love to hear from anyone who has a Bicornuate Uterus.

[Deejoy17]

Hi Margeo - I`m sorry to hear of your loss. You`ll find lots of support here from girls who have also been through losses.

I have a bicornuate uterus, I didn`t know until I was 9 weeks pregnant with #1, I was just told that all my babies will be breech because of the shape of my uterus.

I carried #1 till 40weeks, 6 days and he was head down but I had to have a c/s with him due to other reasons.

I fell pregnant with #2 when #1 was 5.5 months, I conceived twins but loss one at 6 weeks, I`m now nearly 37 weeks pregnant with my baby boy and again he is head down.

What were you told about your Bicornuate uterus?

Take Care

Dee

[margeo]

Hi Dee,

Well, firstly they have said that with a Bicornuate uterus there is not much room for a baby to grow and there is a chance your baby can be born premature, also was told miscarriages are more common in a woman with a uterus like mine. My OB also mentioned something about removal of a septum in the uterus. If that is removed it [U]might help the next pregnancy to go fullterm.

I am just hanging on, as it was my first I do believe if I try again I could be lucky.

[KAB]

Hi margeo,

I just wanted to say how sorry i am for the loss of your baby. I dont know anything about bicornuate uterus's but I lost my first daughter Katelyn at 18 weeks so i am here for you if you want to talk. Losing a baby is a terrible thing to go through and i am sorry that this has happened to you. My heart goes out to you and your family.

Love Sarah xx

[Divvy]

Hi there Margeo.

My sister in law has a bicornate uterus. She lost her first at about 19w, and has gone on to have a healthy baby boy, naturally, at 38 weeks, recently.

It is more common to have premature or breech babies if you have a bicornate uterus. It is more common to have second trimester losses. However, with appropriate supervision from a specialist, it is more than possible to have a healthy baby.

Best wishes, I'm truly sorry to hear of your loss. I know your little one will always be watching over you.

[Kirsty EW]

Hi Margeo,

Just wanted to post to let you know that I am sorry to hear about your loss. Big hugs I hope that the reason you miscarried had nothing to do with the shape of your uterus and was instead just "one of those things".

I'm slightly reluctant to tell you that I have a bicornuate uterus... Gus is my first baby and I carried him until 29wks but it was a difficult pregnancy. I had to spend most of the pregnancy on bed and couch rest and then the last few weeks in hospital on total bed rest. I bled heavily between wks 5 and 19. Then at wk 19 I started heavily leaking amniotic fluid and then at 23 wks Gus's sak completely ruptured. Aaghhh - but as they say all's well that ends well. I now have an 11month old gorgeous little boy. I'm happy to answer any questions you may have. xx

Hello,

I lost my baby girl two months ago at 21 1/2 weeks, my waterbroke at 20 1/2 weeks. I will be going through some tests to see if I have a malformed uterus? or septum? I am really nervous about the results, I haven't been able to sleep well for over a week now.


Deb - 27
DH - 27
Miscarriage October 2005
Ava born sleeping April 25/06

[Keen]

Margeo - Im really sorry to hear of your loss sweetheart. Wish there was something that could be said or done to ease what you are feeling right now - but I know there isnt.

I have been diagnosed with a very slight bicornuate uterus, and have been told it shouldnt effect things - however as you can see by my signature - I certainly have not had a good run and am wondering whether I have been misinformed.

Anyway, you try and hang in there for now :hugs: I hope you get some answers and a solution soon.

[Baby~amore`]

Margeo I am so very sorry for your loss - there are no words to express how devastating it is and the fear of it happening again.

Last May 2005 I was told I had a bicornuate uterus after a hydrosalipingogram - an ultrasound where they squirt saline/contrast into your uterus via cervix.A Gynae/OB did it too - and it was reported on.I did so much googling it scared me silly but also gave me hope to hear others stories of no problems.

I was doing IVF but the DR said it shouldn't be too much of a problem - more worrying was damaged tubes and fluid in one tube.I also had lost our daughter at 26weeks pregnant for unknown reasons.She died in utero - no warnings/no bleeding just no heartbeat at an appointment. I was devastated to think the bicornuate uterus might had had something to do with losing her.

Later I had a laproscopy June 2005 to remove damaged tube and had fluid in one and the gynae said I did not have bicornuate uterus - it had just appeared that way by ultrasound. How did they diagnose you ?

DEb- DSV - I am so sorry for your loss - I hope you find answers. WE never did after we lost Charlotte at 26weeks (22 months ago) and I found it the most difficult thing to go through aside from grieving ... the constant wondering WHY did it happen ? Could it happen again ?

We had a tests but nothing showed. On the bright side I have just given birth to IVF twin sons after a pregnancy fraught with worry that it might happen again to one or both - thank fully my little miracles arrived safely though a little early for another reason.

I wish you both all the very best in your journeys.
with hope
Trish

[margeo]

Hello to all,

I just got back from my OB today to find out that all this time the ultrasound results kept picking up that I had a Bicornuate Uterus, until my OB sent me to do a 3D Ultrasound. Today it was clearly mentioned to me that I have a Septate Uterus not a Bicornuate Uterus.

I will be going into day Surgery in September 06 to correct this problem, it is called (Hysteroscopic Metoplasty with ultrasound control. A thin wall of tissue will be removed) I was scared at first when told about the procedure but when I heard about the results after the procedure is completed I did not say a word.

Once the procedure has been completed, the chance of a fullterm pregnancy is between 80 - 90% where as before the surgery it will be 10 - 15%.

I would like to say thank you to everyone who has been posting in here and sharing their stories. I am alot more stronger now than I was before.

Thank You

I am happy to answer any questions you may have.

Firstly i would like to express my deepest sympathy to those who have lost one of life precious gifts my heart really goes out to you. I have recently find out at 6 weeks pregnant with my first child that i have a bicornute uterus and was told by the lady performing the ultrasound that women with this abnormality often have problems with infertiltiy and miscarriges. I was also told the my uterus's were symetrical/equal in size and implation had occured in the left side. I am curouis to wether other user's new if there's uterus's were equal in size and if not did they find that complications occured when implantation occured in the smaller sized uterus?
I pray to god that i have a succesful pregnancy and a healthy baby is delivered at the end

I also have a bicornuate uterus of equal size and am 10 weeks pregnant. I've scoured the internet for information but there are so little studies done on our condition and most of the studies have such small numbers you have to wonder about the accuracy. My pregnancy is also on the left side. I actually had ivf and the FS implanted on the left so I was expecting that. The second trimester is the scary part for us so I'm just keeping my fingers crossed and hoping I'm one of the lucky 50% whose bicornuate pregnancy makes it.

This is all so scary. I went to my first ultrasound and thourght that all i had to worry about was making sure the baby was in-utero then they tell me i had bicornuate uterus and now i just try not to think of the possibility of miscarrying especially in the second trimester would be just devestating. I was wondering if enybody knew why there is so many risk in the second part of the pregnancy? I was hanging out till the end of first trimester now i will extending that until the day of delivery i think would be a more realistic plan . Well i have my second ultrasound tommorow to hear the heartbeat and hope in 7 months time i would be able to hold my precouis little gift . I was also wondering how margeo went with her procedure? Seeker hope you don't mind my asking but have you had troubles with fertility due to your uterus to be resorting to IVF? Well lady's i only wish that we could be all those lucky 50% and hope that we have happy story's to report in future posting's.

A true Bicornuate uterus shouldn't cause infertility but rather just problems with carrying the baby because everything is half the normal size and we can have a weak cervix. I had IVF after trying unsuccessfully for a year and a half to get pregnant the old fashioned way. (I'm also 38 so the clock was ticking!) The FS wouldn't give me Clomid or any fertility drugs to try due to the risk of twins so it was basically IVF or nothing.

Anyway I went to my OB today who gave me a good lecture about staying positive and not worrying too much because it is not something you can control and he said even though I'm 38 now I still have a couple of years to keep trying so not to obsess about it. I am going to go for more ultrasounds than normal though to monitor my cervix for weakness after about 15 weeks so make sure you insist on that. If they find a weakness they can stitch it up.

Keep in touch everyone - It's unlikely we'll meet anyone in real life with this condition

[Charlotte]

Hi Margeo,

I'm sorry to hear of your loss, I also have a bicornuate uterus, I have suffered 2 miscarriages, the first when I was 8wks, the 2nd when I was 13wks, am currently 31 wks 4days pregnant, and am hoping the birth goes well.

The only thing that I have been told is that I will more than likely have an early labour, and that I will be more uncomfortable than other women due to the way she is laying.

My husband and I suffered a few infertility issues, we thought that there was a problem with one of us, and were really surprised when we found out that we were going to be parents.

I was always told that my miscarriages were just something that happened, but now I believe that in fact it's the shape of my uterus that caused it.

[dusty]

Hi Charlotte
Welcome to BB!

Sounds like you have had a tough journey to get to where you are now. WIshing you all the best with your birth.

Have you checked out the pregnancy and belly buddy forums of the site? You are welcome to jump on in and introduce yourself.

[mumof12b]

Hi everyone

I thought I'd just share my experience of being diagnosed with bicornuate uterus, as I also found there was not much information when I researched it in 2006; yet I found comfort in reading the posts of other women with the condition.

When I went for my first scan at 6.5 weeks, I found out that I had a bicornuate uterus, and that my little baby Audrey was in the right 'horn'. All throughout my pregnancy, with subsequent scans, it was confirmed that I had a bicornuate uterus. It was also quite obvious as little Audrey was on the right side of my belly, and hence, my belly was a bit lop-sided :-) I did not suffer any complications throughout my pregnancy, although some doctors advised me that I was at risk of uterine rupture as soon as my waters broke.

However, this is the interesting bit....I was scheduled for a Caesarean at 39weeks because she was in the breech position but my waters broke at 38weeks and I had an "emergency" (?9hrs terrifying wait later??) caesarean....
The day after the delivery, I asked the nurse if I could talk to the doctor about my bicornuate uterus. She checked my medical record chart and the surgeon had written in the medical record that there was "no evidence of bicornuate uterus upon visual inspection of the uterus" !!!

You would think that a visual inspection would provide the best opportunity to evaluate the condition?!!

So, it all remains a mystery to me whether I indeed have a bicornuate uterus.

I just wanted to share this experience with you in case any of you have a chance to ask your doctor to take a proper look at your uterus (if you're having a Caesarean) during surgery, and to find out the extent of the condition. I know next time, I'll be asking many more questions!

Wishing you all the very best with your pregnancies, new little bubs, toddlers & hubbies,
Liz

[mAXYsGurl]

hi,
My partner and I have decided to start a family and we have been trying for about 4 months now still with no luck. About 1 week ago we found out that i have a Bicornate uterus and that it is the reason we are having trouble. I have always wanted a big family so it was hard news to bare.

I am really sorry for your loss and hope that one daysoon you will have a bubbly baby to hold in your arms.

It is really comforing to know that there is other people in you situation.

Thank you to everyone who shared there stories aand good luck to everyone in this situation.