Acquired Hydrocephalus...do all babies need treatment?

[Nicole S]

I have a beautiful 5+ month old baby boy who had hydrocephalus.
This was not present in any U/S while I was pregnant and was only really picked up when he was 2 months old.
It has been monitored since then and when he was sent for U/S at 4 months which then our Paed suggested a MRI which was done a week after.
Paed said that there is a moderate amount of fluid however at this stage no treatment required.
I saw our clinic nurse yesterday for a monthly check up who advised me that I should see our paed again as his HC has gone from 44.3 to 46 in 5.5 weeks.
Anyway am seeing him this morning and just wanted to know if anyone's bubs have had Hydro but treatment wasn't required OR is treatment always required??

Thanks in advance.

Worried and confused mum

[Nicole S]

Well after seeing our Paed yesterday Aaron needs another u/s to check the fluid levels and see if there has been any increase.
From what the paed was saying is if it is normal pressure Hydro or the fluid is at the same level no treatment needs to be done so that is what I am really praying for.

Any advise in this area would be really appreciated.

[Kate07]

Hi Nicole

Sorry you haven;t had any replies. I have had friends with hydro, and it can be hard to predict what will happen.

It is good that your clinic nurse is being vigilant and watching for any changes. Checking the pressure is really the only way to see if the fluid is affecting your little one.

I am sending positive vibes that the ultrasound will give good results, but if it doesn't you are living in one of the best countries to deal with any issues.

take care,

Kate

[Nicole S]

Thanks Kate
Congrats on your pregnancy!!

[csab]

Nicole I am unable to give you any information, but wanted to say how sorry I am your little one is going through this. Sending loads of your way, and good news comes your way.

[Nicole S]

Thanks for the support and prayers

[Nicole S]

I really wold like to hear from any other mums or dads out there who's child has hydrocephalus.

Thanks in advance

[Nicole S]

I am really confussed....there have been so many people who have viewed this post but no replys???

[tenar]

I think hydrocephalus is pretty rare, isn't it? Maybe there are no other members at the moment who have a child with that condition. In general people won't reply unless they know the answer to your question.

I'm sorry to say that I have no idea either. I'm sure this is something you can ask your doctor.

Have you tried looking for an online support group for people with hydrocephalus, or parents of children with the condition? I bet there's at least one out there, and maybe they can help with advice.

Hydrocephalus

might be a starting point?

[csab]

Hydrocephalus

Nicole - I hope this link helps, on another BB members thread. If it doesnt work go to search and type in hydrocephalus and enter.

You could find some others in the same situation. Sorry again I cant offer any help, but sending more hugs anyway.

[Bridg]

Huge Huge to u sweets. I can only imagine what it is like for u, DH and bubba. Have u tried googling for sites with children with hydro? I googled one for LJ's condition, and found a support site.

U know I am here for u if u needa talk. mwah.

[Nicole S]

Thanks ladies

[bjrose]

Hi. I hope things are ok.
My BIL contracted menangitis at a few months old & it caused his hydrocephalus. He had treatment, but now is intellectually disabled (slightly IMO), but his case sounds much worse than yours.
I don't know much about it, but I can't imagine how scared you must be.
goodluck.