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Babies & Children With Special Needs & Disabilities Does your baby or child have a special need or disability? Share your experiences, challenges and triumphs here.


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Old November 3rd, 2009, 07:53 PM
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Join Date: Nov 2009
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Tina Kennes is an unknown at this point
Default bethlem myopathy
Hello everyone,
I am a 32 year old woman diagnosed with Bethlem Myopathy. As I have a daughter of almost 5 months old, I really understand all the questionmarks you may have concerning raising a baby with Bethlem or Ulrich.
I can only say that life might be hard sometimes when you have it, but I believe everyone has his problem to live with and to me it isn't the end of the world... whatever I have found on my path through life, I have overcome and I am sure your little ones will do the same.

If you want to talk about my experience with BM and my tips or tricks, please let me know, I will also join the yahoo "Ulrich" group.

Regards, Tina
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