[melbel]

I totally get where you are coming from holymoly. I guess i have been lucky in that I have always had a thirst for knowledge about my medical conditions and have always been one to ask bazillions of questions about every possible nano aspect of what was going on. I think this is because i have had a life threatening auto immune disease since I was nine and was raised by my parents to keep on top of the latest research and treatments etc (my dad was an industrial chemist so used to bring home scientific journals). So when we faced with the infertility "badge" many years ago I approached it the same way right off the bat and did soooooo much research, asked second and third and fourth opinions and found myself a FS who was open enough to listen to my views and give an honest, respectful opinion on them. I think also having that other auto immune condition and my knoweldge of the interactions between auto immune disorder twigged me as to the plausability of there being an auto immune connection earlier than maybe most people would have.

I was very lucky to find a FS who was secure enough in himself to refer me to fly to sydney and consult and have tests with Dr. Sacks and then listened to the results and took on board Gavins recommendations for treatment....I feel very blessed in that and also the fact he was willing to try different protocols to get the best possible outcome.

What I was trying to do by sharing my knowledge of IVIG therapy is just make sure that people were aware of all the issues surrounding it, especially its use here in australia at the moment. My personal view is that IVIG could be a very effective treatment for immune related fertility issues.....I personally could never afford it, not even I sold the house and lived in a caravan and I think that's what i wanted to make people aware of.....It is great to have hope in this frustrating, seemingly never ending tortuous journey to have a take home forever baby, but it is also important to be realistic about it all.
I think that for people who can afford IVIG therapy they should go for it....if i had the money I would be thats for sure because the prednisone sure makes my other condition much harder to manage....it was never my intention to put people off it as a treatment option, just wanted to make sure all the facts for and against were put out there...

And you are right.....it totally sucks that the information is not more readily available, I was just lucky enough to be able to access scientific journals etc which not everyone can do.......


Melanie 39 Geoff 39
4 beautiful angels: Jul '04, June '06, Sep '06, Nov '08 Forever Remembered in Mummy's Heart
Too Many PGD/IVF cycles to remember.....TTC since Feb 2004