Oh thank goodness for you guys!!!
I have just been diagnosed with adenomyosis, I had been refered to the Recurrent Miscarriage Clinic at the Women's as we have had 6 miscarriages in the space of 18 months, i have PCOS and my mum has Lupus, i thought it would have something to do with me having Lupus also (which i dont) however through an ultrasound they diagnosed Adenomyosis and the doctor there said it will NOT effect fertility and is NOT the cause of the losses, well i am no expert but i have been blessed with 4 children, all c-sections and had no problems in conceiving, my youngest is nearly 3 and to have all these losses since him, i would say that it has lots and lots to do with fertility and the ability to keep a pregnancy, i spoke to my f/s about it and he confirmed that it is nearly impossible to get pregnant naturally when you have adenomyosis as it is much harder to get rid of, due to where it is, and the only way to relieve pain is with a hysterectomy which is not an option at the moment. I am currently doing my 2nd round of IVF, and he has put me on cortisone, antiboitics and asprin to help me get pregnant and keep a pregnancy, so fingers crossed this time round we will be blessed
i think that not enough is known about this condition, it is a very horrible thing to have, i am in constant pain which i thought was the PCOS, but i think personally that the Adenomyosis is much worse to handle rather than the PCOS, and that is bad enough to bare! If i am not on the pill i will bleed for over 120 days on end, become anemic and the pain is just really really too hard to handle, when i am on the pill, even when i reach the sugar tablets i will not bleed at all, and this could go on for another 120 or so days until i take something to bring on the bleeding, its just a rollercoaster ride, emotionally and physically and like others IRL no one seems to understand it, which sometimes does my head in cause i start to think that maybe its just me, maybe i dont really feel this way - but i can assure you the pain is all very real!